Duties and Responsibilities

• Collaborate on local and national participant recruitment, enrollment, and retention efforts.
• Coordinate participant scheduling and monitor participant progress throughout study participation.
• Coordinate participant compensation activities and maintain required documentation.
• Coordinate Parent Advisory Council meetings, prepare meeting materials, document discussions, and facilitate communication with members.

• Implement study protocols involving surveys, interviews, 7-day EMA, and recorded family interactions.
• Build, manage, and troubleshoot electronic survey packets and EMA systems.
• Conduct virtual study visits including surveys, interviews, and family interaction sessions following established protocols.
• Conduct virtual study visits with Spanish-speaking participants and families, as assigned.
• Assist with oversight of informed consent, assent, and study documentation.

• Perform data entry, verification, coding, quality assurance, and data management.
• Code interview and family interaction recordings while maintaining coding reliability.
• Code Spanish-language interviews and family interaction recordings, as assigned.
• Assist with data analysis and interpretation.
• Identify protocol deviations and contribute to corrective actions.

• Maintain and update the study website, including participant resources, recruitment materials, and study announcements.
• Monitor website inquiries and coordinate responses with study leadership.
• Mentor Research Assistant I staff and student assistants.
• Participate in research team meetings.
• Assist with preparation of abstracts, manuscripts, presentations, and dissemination activities.

• Perform other research-related duties as assigned.

• Required: Bachelors Degree OR equivalent training acquired via work experience or education
• Preferred: Bachelors Degree

• Required: None
• Preferred: 1-2 years of previous job-related experience

• Bachelor’s degree in nursing, public health, psychology, social work, health sciences, or another health-related field; or an equivalent combination of education and relevant experience.
• Minimum of one to two years of experience supporting clinical, behavioral, or community-based research studies.
• Excellent interpersonal, organizational, and written and verbal communication skills, with exceptional attention to detail.
• Availability to work a flexible schedule, including evenings and weekends, to accommodate virtual participant study visits.

• Bachelor’s or graduate degree in nursing (BSN, MSN, or equivalent) preferred.
• Previous experience working with individuals and families living with spina bifida or other chronic health or complex care condition.
• Bilingual proficiency in English and Spanish is preferred.
• Knowledge, understanding, and commitment to the mission and values of Loyola University Chicago and the Marcella Niehoff School of Nursing