Position: Educational Resource Coordinator

Reports to: Community Education Manager

Location: UK or US, Remote Based

Working Hours: Full-Time, 9am-5pm (GMT/EST)

Salary: UK - £27,000 per annum / US - $36,000 per annum (dependent on location)

Contract: Fixed-Term Contract (6 Months)

Organization Overview

The Ehlers-Danlos Society’s mission is dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD. 

Our vision is to create a world in which each person living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders has the right treatment and care at the right time for their specific needs. 

Overview of Responsibilities

The Educational Resource Coordinator supports the development and coordination of educational resources related to the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and associated topics. The role contributes to a range of educational initiatives by helping transform information into clear, accessible resources for community, professional, and public audiences across multiple formats and platforms. Working across resource development, review, publication, and translation activities, the Educational Resource Coordinator helps ensure educational content is accurate, consistent, and accessible.

Key Responsibilities/Essential Functions

This role has three (3) core areas of ownership, the responsibilities involved include, but are not limited to: 

Educational Resource Production, Repurposing, and Support

• Develop, adapt, and update educational resources related to EDS, HSD, and associated topics, including webpages, infographics, brochures, printables, videos, guides, and other educational materials.
• Repurpose approved content into multiple formats to improve accessibility, reach, and engagement across community, professional, and public audiences.
• Translate scientific, clinical, and technical information into clear, accessible educational resources.
• Update assigned resources to reflect approved terminology, classifications, organizational priorities, and emerging evidence.
• Support alignment of educational content across The Ehlers-Danlos Society’s website, app, social media channels, newsletters, educational programs, and other communication platforms.
• Collaborate with internal and external stakeholders to develop, review, and publish educational resources.

Graphics, Web, and Review Coordination

• Coordinate assigned educational resources through drafting, review, revision, and publication workflows.
• Collaborate with internal teams and external contributors to support the timely development and publication of educational resources.
• Prepare content briefs, supporting materials, and content handoffs for web, design, communications, and other teams.
• Track assigned projects, timelines, feedback, and approvals using project management and content tracking systems.
• Incorporate reviewer feedback and support revisions to educational resources as required.
• Support quality assurance and continuous improvement activities, including content reviews, feedback collection, and other initiatives to help ensure educational resources are accurate, accessible, publication-ready, and aligned with organizational priorities.

Translation Coordination

• Plan, coordinate, and support the implementation of translation activities for educational resources across multiple languages, where required.
• Prepare source materials and coordinate translation workflows to support the development and review of multilingual educational resources.
• Collaborate with internal teams, translators, volunteers, Global Alliance members, and external translation providers to support multilingual resource development.
• Obtain translation quotes, coordinate translation projects, and track timelines, deliverables, and resource needs.
• Coordinate the review and quality assurance of translated resources to support accuracy, consistency, accessibility, and alignment with organizational standards.
• Develop and maintain processes, documentation, and tracking systems to support the efficient management of multilingual educational resources.

Work Environment

Under normal conditions, this role is a fully remote position, working from home. However, due to the international nature of the Society’s work, staff may be required to travel to company events, meetings, and conferences as well as some weekend work.

Requirements

• Bachelor's degree in science, health, education, communications, public health, or a related field.
• Strong written communication skills.
• Experience creating or adapting educational content.
• Ability to explain complex information clearly for broad audiences.
• Excellent organization, time management, and project coordination skills, with ability to manage timelines, track details, and follow workflows.
• Confidence using Microsoft Word, PowerPoint, Excel, Teams/Slack, and project management systems such as Monday.com.
• Ability to work within review processes and defined boundaries.
• Stable internet connection required for video calls & cloud-based services as this is a fully remote role. 
• Ability to work with colleagues and stakeholders across different time zones globally, which may occasionally include early morning, evening, or weekend work.

Diversity Statement  

The Ehlers-Danlos Society’s commitment to diversity and inclusion is driven by the four pillars of our mission: C.A.R.E. - providing care, access, research and education in all that we do. We are a global, multicultural organization, as such we seek to increase opportunities for individuals from diversified backgrounds and are committed to building an inclusive culture that celebrates the diverse voices in our team and community. The Ehlers-Danlos Society actively recruits, employs, trains, compensates, and promotes opportunities regardless of race, nationality, ethnicity, gender, marital or civil partner status, caring responsibilities, disability, gender identity, age, social class, sexual orientation, religion, and other protected status as required by applicable law.

Job Types: Full-time, Contract

Pay: Up to $36,000.00 per year

Benefits:

• 401(k)
• Dental insurance
• Employee assistance program
• Health insurance
• Life insurance
• Paid time off
• Vision insurance

Application Question(s):

• To be considered for this role, please apply directly using The Society's application form here - https://wkf.ms/4y7wYCT

Work Location: Remote